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Saying Farewell to Gerry – a timely death at 95

 

Gerry Harris

12th March 1918 – 28th January 2013

Death is always a shock. Even though Josh’s grandpa Gerry had been living with dementia for a good many years; even though he had recently been moved to the end of life ward at the hospital where he spent the last four of those years;  even though we had been told that his temperature had dropped to 31 C, that he had been put on the Liverpool Care Pathway and was not expected to last for more than a few days or weeks; even though we had visited him and could see for ourselves that Gerry would not “be getting up from this one”, still death comes as a shock.

Josh’s Grandpa is Jane’s dad and we loved him very much.  That is why his death, his life no more, is still hard to take in.  Gerry was 95 and had had a good and inventful (sic) life.  The obituary in the Glasgow Herald headlined him as “businessman, inventor and pilot who taught Prince Philip to fly.”   He was nearly 80 when his last creation, a revolutionary fire fighting device, won the John Logie Baird Award for innovation in 1996.   We are sad to see him go, but we are at peace with his passing.  Unlike Josh’s, Gerry’s death is in the natural order of things.      If there is a timetable for death, if there is fairness in death, then clearly Josh died too soon and Gerry perhaps too late.

In hospital – June 2012

But justice is a concern for the living – for death itself there is no moral dilemma.   It remains for us who would still breathe to make an account of these deaths, to mourn them as we do, and to wonder if there can be anything like a good death.

By strange coincidence, on the weekend between Gerry’s death and his funeral, Jane and I  had attended a symposium on “what makes a good death”.   Organized by the Wellcome Foundation, and intended to contribute to a growing conversation about death and dying, we were both curious about how others were dealing with and talking about this so-called ‘difficult’ subject.    The show opened with various readings from literature including Roger McGough’s poem …

Let me die a youngman’s death
not a clean and inbetween
the sheets holywater death
not a famous-last-words
peaceful out of breath death

When I’m 73
and in constant good tumour
may I be mown down at dawn
by a bright red sports car
on my way home
from an all night party ….

It continues in similar vein.     To my mind a rather distasteful attempt to glamorize death, to sanitize it and to take death away from its natural place as a conclusion to life’s inevitable story.    In these lines you can find both Gerry and Joshua but neither of these deaths were in reality what McGough would wish for as his own ‘good’ death – Josh never got to be 73 and Gerry, instead of a slow decline to a morphined non-existence would, I suspect, much rather have gone out with a bang.

The day before Gerry died

What the poem does point to though is the wish to have some kind of conscious control over how we die.   In modern society this is presented almost as a consumer choice; the planned for death, with living wills and demands for legally assisted suicide.  The more agency we have, the better our death will be – if it is we, that is, who are doing the dying.     But what of those left behind?    After ‘our’ death it is still left to the living to mourn the nature, tragic or otherwise, and the consequences of our death.    So perhaps a better question to be asking is “who is the good death for – the living or the dead?”    Or both.    If we understand our lives, our individual selfish lives to have meaning only in relationship with others, (…… no man is an island etc) then our dying and our being dead can only find fitting resonance with the survivors of our death.    For both Gerry and Joshua who now know no more of their lives, this is actually meaningless.    For us it couldn’t be more relevant.

While Gerry’s was to be expected, the unnatural circumstances of Joshua’s death precludes an easy ‘inbetween the sheets’ kind of mourning as we struggle to continue our relationship with him.   His life cut short creates a vacuum not only in our hearts but also in the story we would want to tell of him: we fill it by projecting our wishes and ambitions for him on to the future he never had.    If Josh were alive now, he’d have found another job, he’d have found another lover, he’d have traveled again, set up his own video production company making underwater music films, he might even have gone back to college.  Our dreams for Joshua will forever haunt our nights and days, but we have no need for such fantasies for what an old man might do with the rest of his life.     A good death is perhaps possible only after, what McGough’s poem doesn’t reveal, that which makes for a good and full life, as lived by Jane’s Dad, Gerry.

How then to tell of the life that gave life – that gave life to Jane and thence to Josh and our other children?    I have known Gerry for as long as I have known his daughter.  My first encounter with him was when he took us out for dinner soon after the two of us had got together.  I was immediately taken and excited by his anarchic behaviour, his unabashed sociability and his seeming need to display both as publicly as possible.   If there was a table to dance on he’d be the first on it.

Gerry Harris was an engineer by trade, but I knew him best as a difficult father, an over protective husband, a terrible businessman, a gifted if slightly bonkers inventor.    Gerry’s triumph was BLASTER, a water jet that started life as a new form of garden sprinkler but ended up as a fire fighting device that could drench flames in seconds and with minimal water damage.   Gerry had first showed me his creation a few years before and we now have precious video footage of him running round his garden in the pouring rain as he attempts to activate a series of sprinklers made from bits of bicycle and beer bottle caps.   These rudimentary  contraptions were to become BLASTER or … wait for it – ‘Boundary Layer And Surface Tension Energy Release’.  By introducing a carefully positioned rotor blade in the path of the water jet Gerry had found a way to turn water (a liquid) into water vapour (a gas), so reducing the amount of water needed to put out a fire by a thousand fold.   Gerry was not only well into his 80’s when he discovered this but also well on the way to establishing a principle that may still revolutionize fire control.    

If Gerry had a ‘good’ life how was his death?  Or how was his ‘dying’?

Gerry began his last journey 5 years ago when after a series of small strokes he developed vascular dementia, a cruel disease that slowly robs the person of their capacity to reason and to hold thoughts in any meaningful way.  From our visits to see him over this time it’s difficult to say whether Gerry’s emotional being, his own personhood, suffered a similar decline.  The one question the family always seemed to be asking – how much of Gerry is still there? – was never really answered.  But death stalked that question at every turn as the frustrations of the disease and its affects on other members of the family began to take its toll.   That and the inadequacies of the care system that Gerry seem to be caught up in – all seemed to conspire to invite death’s continual refrain – when shall you summon me?

In fact Gerry exhibited super human strength in his will to stay alive.   Whilst in hospital he broke his hip twice occasioning major surgery both times and was later sent back to the ICU with a collapsed lung.  Gerry was fit.  He had incredible energy both mental and physical. Despite the progress of the disease Gerry remained bored out of his mind, and despite being confined in his chair, no longer able to walk, he remained constantly on edge with an almost manic inability to sit still.    Ironically it was this energy that would keep him living with the distressing effects of dementia for so long.

You can see something of Gerry’s life in this short film we prepared for the family to watch the day before his funeral.    An early scene in which Gerry recites one of his favorite poems was filmed shortly after he was admitted to hospital.   Click on play button in the bottom left of the screen.

Putting this film together was, as you might be able to imagine, a rather delightful experience, sad but rewarding and I was honoured to be able to do this for Gerry and for Jane’s mum Pat and her brothers.  It felt like I was contributing to the postscript to a long and successful life story.     What I was not doing was dealing with a trauma.   In that sense their was no distress, no break down of confidence, no insecurity, no fear, all of which were so present in the months following Josh’s death.     Equally and despite the initial shock of witnessing Gerry’s lifeless form, I suspect we will be able to ‘move on’ from his death in ways that we are not able to with Josh.   This I think has to do with the way that we as parents are changed as a result of the death of our child – fundamentally and irrevocably changed.

By contrast to Josh’s, Gerry’s funeral was a very small affair, this partly because of Jane’s mum’s wish to keep it very low key and private, but also because of the simple fact that by the time you get to 95 you actually don’t have many friends left to bid you farewell.   Josh of course was known by many, old and young.    If there over 300 who came to say goodbye to Josh, just 12 of us attended Gerry’s funeral not including the celebrant and the funeral directors.   But it was no less meaningful for that.    There was something poignant in its very ordinariness that gave comfort to the idea that death is survivable, no matter if it’s your grandfather or your son.

Jimmy (Feb 2013)

photos by Jimmy and Rosa

 

 

Click here to see more photos from Gerry’s life

….  and for our film about Josh’s fundraising efforts for Alzheimers Scotland

click here JUMPING FOR ALZHEIMERS

 

Beyond Goodbye wins local Best Film award



How nice –  how very gratifying that our film has been awarded first prize in the Best Local Film category of the Stroud Community TV Awards.

We are very honoured to be recognised in this way if only because it helps us (as a society) to talk about stuff that most people will want to avoid.   At the time of Josh’s death and on the day of his funeral I really don’t think we had any idea of of the impact making a film about the event would have on us and on the people who have watched it.    But in documenting our farewell to Joshua, Beyond Goodbye has shown how important it is to take charge (as best one can) of the funeral arrangements for a loved one.

This idea of “reclaiming the farewell” as James Showers puts it, is becoming quite common place now and we can see that a film about one such funeral is quite fitting.   For too long the funeral industry has had too much control over what makes a good funeral and in the process have obscured what the ritual is really all about.  The funeral doesn’t need to be the final act or a way of achieving closure after someone dies – on the contrary, if we see it as the first step of a new journey – a journey into and through grief, then the funeral becomes a much more meaningful rite of passage and one that will aid us immensely through very difficult moments in the rest of our lives.   At least that’s what we’ve found and we are very pleased that our film has found wider audiences, that others have been similarly moved.

"reclaim the farewell" - (photo: Fred Chance)
“reclaim the farewell” – (photo: Fred Chance)

Some quotes from the organisers

Andy Freedman, Head of Cirencester College Media Department and a judge in this category said of the film: “Profoundly moving; unique, original and a significant piece of work. A range of skillful techniques used to create a extraordinarily affecting  film.”

David Pearson of award-winning Arturi films and a judge for SCTV, said: “A brave and compelling account of something most people avoid discussing. It is everything good documentaries should be: revealing, effecting, moving and making the viewer see something from a different perspective.”

Thanks to Philip Booth of SCTV who helped organise the awards, online casino which I’m sure are set to become established as significant date in the Stroud arts calendar.    SCTV already has links to over 700 locally made films which is an amazing tribute to the talent that exists here in the Five Valleys. Apollo Cinema next year Philip?
Our thanks also go to Simon Ffrench on camera, Marc Hatch for sound, and photography by Fred Chance and Briony Campbell, but for whom we wouldn’t have such a splendid record of Josh’s funeral.
Jimmy (Feb 2013)
Check these links out 
for the SCTV AWARDS page
for the full version of BEYOND GOODBYE
for two other excellent short films from the awards that have attracted our attention
“1 in 10” by Nick Baker for best campaign film – which highlights the role of unpaid carers
“Letting Go” by Sean Gleeson – runner up for best local film

16th January – 2nd anniversary

Last week we survived (is that the right word) the second
anniversary of Josh’s death.

Two years ago last Wednesday 16th January Josh was riding along the Ho Chi Minh Highway, a couple of days out of Hanoi and on his way south. Then – accident – we are still not precisely clear what happened – but in a second his life was gone.

That was two years ago and still it’s hard to believe the reality of our lives. Each morning is still a trial – one of having face yet again the enormity of the tragedy – to wake and be brought face to face for the umpteenth time that Josh is no more and that our family of five is now so deplete. All made worse  in the days leading up to his “anniversary” or his ‘death day’ as we struggle but want to call it.

Just what does this particular day hold that the others don’t? Do we really want to mark it was we would celebrate a ‘birthday’? We know that many bereaved parents really dread the day and hate the idea that the anniversary of their child’s death should in anyway be separated out from all the other terrible days of our lives. Its only a day, one moment in time that often bears no importance to the actual death and who invented time anyway.

Josh in Hanoi

But we think they are important. Last Wednesday, on Josh’s ‘deathday’, we met with Joe and Rosa and had lunch at one of his favorite restaurants in Borough Market, near where he used to work at the Ministry of Sound. We remembered Josh, considered how our lives had changed and made plans for our trip to Vietnam later this year. We placed the card his friends from the Ministry had sent at the end of the table and drank a toast to him and to us. This was our own private ritual, important for us to come together on a significant date and to recognize jointly what we all go through everyday individually. We can’t always be together but if there are times when we can make an ordinary day special and shared with love, then surely josh’s birthday and his deathday are those. The ritual is nothing if not the coming together in an act of shared remembering.

But what was also really comforting about the day were the number of emails, cards and text messages we got – (such a relief from all the well intentioned but disturbing ‘happy christmasses’) and we’d like to share some of these simply beautiful heartfelt messages now –

A card from one of Josh’s old school friends –

“Another year is upon us and although the passing days bring closer the realisation of what it means to be me without Josh, they dont make it any easier. This is a difficult day not just because the world lost Josh but because we are all reminded how fast and relentlessly life goes on…..”

and another –

“I think about you often and your life reminds me to live mine the way I want to and not let things hold me back”

From one of Rosa’s friends

“I am always here for you. These last couple of years I cant even begin to imagine how difficult it has really been and I am here for you every step of the way”

From a friend of ours-

“You will soon be waking to another day, another month, another year without Josh.
Have been thinking about you and how much Josh accomplished in his 22 years of life….and how much you have accomplished in his name and memory in the 2 years since he died……..”

From another bereaved parent

“these anniversaries are awful days, we shouldnt have to have them in our diaries, it all just sucks. I will light a candle for Joshua tonight ….”

From a friend whose daughter was born at the same time as Josh

“thinking of you all we will light a candle for josh tonight and leave it burning till morning”

From a neighbour

“Just to tell you that we are thinking of you both as we come up to the second anniversary of Josh’s death. It must be an acutely difficult time for you and all the family. I know you will get support from each other. How to keep going when these things happen so randomly? Its impossible to answer these questions. Just let me know if you want to get out for a walk and a talk anytime.”

These messages have given our family so much strength and really have made a difference. Jane was reminded of the day of Josh’s funeral when she felt her heart would break but realized that she felt safe and held by the love of everyone present.

So much has changed since Josh died. We are changed along with the slow dawning that the pain of losing a child is like no other. Like love, and grief is in the end all about love, it’s a pain that can’t be regulated, medicated, reasoned with or got over. But with the passing of time we are beginning to accept our new lives without Josh, and his absence is easier to live with. But this is a slow slow process and has no timetable. It will be what will be.

So two years on what has shifted? Gradually the fear and anger that is actually a normal part of grief and has at times led people to avoid us, has lessened. And that sense of isolation, which has so much to do with being locked into the moment of Josh life and death while everyone else’s moves on, that too has dissipated and we are touched and thankful to our friends old and new who have found the courage to stay alongside us on our grieving journey.

 

Jane and Jimmy (January 2013)

 

Josh with Mum and Dad in New York (2009)

MORE TO DEATH a new “e-zine”


Our story, our website, our Josh have been featured in a new on line magazine ‘More to Death’.

The first issue is published this month and is free to download.  In fact its an extremely easy and accessible read – just click on this link and your there.  Lots of interesting stuff but our article “Grief and the Internet” is on pages 34 to 39.

An extract …

“People don’t really die on line”.   It’s three months after the funeral and Jessica, a long standing friend of our son Joshua, has come to see us.   Although close playmates through out their childhood, they had grown apart since we moved away from London, their friendship still strong but mainly exchanged via Facebook.   They probably hadn’t seen each other in the flesh for over a year when Josh was killed in a road accident whilst travelling in SE Asia.  He was 22.  Now we are standing by Josh’s tree, a young copper beech, planted in his memory and for which Jessica had performed a song she had specially composed for the occasion and which talks of her sadness of not making more of an effort to stay in touch.  We share her regrets but in her remark we also realise that in some ways, life after death on the internet is not that much different from life before. Josh’s Facebook page for instance is still very active; although he can no longer contribute, his on-line identity is still such that messages to him and postings on his ‘wall’ are an almost everyday occurrence. …..

Read More to Death

 

The Josh Edmonds Memorial Scheme

Yes its happened – the Josh Edmonds Memorial Scheme is now LIVE!


What’s it about – well its a link up between Cirencester College where Josh did his A levels and the Ministry of Sound where he worked for a number of years. The Josh Edmonds Memorial Scheme (let’s call it JEMS for short!) is an annual award to any young person in Gloucestershire to work as an intern at MoS.

In honour of Josh’s own short career JEMS will give an opportunity for someone like him to follow in his footsteps and get a toe hold in the music industry.

So proud and thanks go to Andy Freedman at Cirencester College for hosting the scheme and to Lynsey Johnson (head of HR at MoS) and Lohan Presencer (CEO at MoS).

Lohan told us Josh “was a tragic loss to his friends at MoS. Hopefully this placement will give someone the same opportunities that Josh had and continue his memory”

 

for more info go to THE JOSH EDMONDS MEMORIAL SCHEME


Imagine

I’m not going to say anything about this beautiful film – just watch and you’ll get the point. We are so pleased that Josh did not die from hate, or violence, in war or from torture or brutality, from pride or hunger, from zealotry or self loathing. I think he would have loved this!

Here’s the link to the original site http://www.takepart.com/article/2012/12/02/weaponry-symphony-artist-makes-music-confiscated-guns?cmpid=tp-ptnr-upworthy

Josh in India with his sister

Rosa has just sent us this beautiful picture.   She’s in Candregarh in India at the wedding of one of her best friends brother.     A mehndi or henna tattoo is typically applied the day before a wedding.   Its a common custom throughout the subcontinent and across all religions, Hindu, Muslim and Sikh.

Friends in the Blogosphere

How do you spell blogosphere?   We’ve not really been there before but now that a number of blogs have been spreading news about BEYOND GOODBYE, I guess its time we took a look.

First off, this lovely woman from across the border in Scotland added an item about the film on her site – see it here final fling.   Final Fling is a great site started by one Barbara Chalmers who has dashing white hair and wears bright red lipstick.    From what I can gather she’s an artist, a life coach, an independent celebrant and plays in a samba band. How she finds time to put this site together is beyond belief but its full of masses of information about what to do to prepare for a good death and a good funeral.     Nice site Barbara – and thanks for spreading the word about our film.

You’ll also find Beyond Goodbye on the front page of the Natural Death Centre’s website . Here they’ve used it as an example of what is a good funeral. The Natural Death Centre is the main resource in this country for independent funeral advice.  They see their role as “playing a central part in demystifying the traditional funeral, encouraging thousands of families in having the kind of funerals they wanted, and helping create opportunity for new rituals to emerge.”

Earlier in the year the film had been featured on Seven Ponds, a website on the west coast of USA – see here for some of the comments.     Seven Ponds also blogged about Rosa’s show In Absentia.      Suzette Sherman, founder of Seven Ponds says in her introduction, “We see a world where everyone can experience death in their own personal way and feel it’s all okay”.    Everyone’s death is unique and everyone will experience grief differently.   Seven Ponds is a fantastic resource for helping people to embrace end of life with real love and compassion.   As well as being environmental friendly, with advice about planning a home funeral (home births why not home funerals?) the site also has masses of examples of the ways people have responded to death and dying in art and creativity.

Dying Matters is part of the National Council for Palliative Care with a mission “to support changing knowledge, attitudes and behaviours towards death, dying and bereavement, and through this to make ‘living and dying well’ the norm”.      Its actually a coalition of various organisations across the NHS, voluntary health and care sectors, trade unions, the funeral industry and more.      It’s website recently featured our contribution to their Day of the Dead conference.   We had showed our film at the event and  Jane’s had spoken about bereaved parents being peoples worst nightmare.    The article Turning grief into positive action quotes her “our aim is to share our grief in a positive way, both for people who know us and those who don’t. We hope that in our death-averse culture, by bringing our experience into the public domain it will encourage others to open up more about an area so shrouded in silence…. Our aim was, and still is, to celebrate Josh’s life as well as mourn his death.”

Another American site (they seem to talk about death a little easier across the pond) had also blogged about our film soon after it was finished. The Daily Undertaker’s editor Patrick McNally reproduced an interview with both of us and you can read that here Beyond Goodbye: A Conversation with Jimmy Edmonds and Jane Harris. Bit of a surprise though when we found put that we’d been tweeted by Robin Ince who been looking for Cookie Meuller and found Rosa’s article – Making it Real.  (Robin Ince is a stand up comic BTW)

The one thing in common with all these links is the wish for people to have meaningful and life affirming experiences of death, dying and bereavement.    And the best way to do that is to talk,  to share feelings, and be a support for one another.    What’s amazing is that through the internet, it’s now possible to find a sense of universal understanding and compassion from people we may most likely never meet.       We are glad that, from our own tragedy, others have found some comfort (and perhaps example) from the things we’ve done for Josh.

 

Jimmy and Jane

 

December 2012

 

 

 

 

 


The Compassionate Friends – promo video

The Compassionate Friends is a wonderful charity dedicated to supporting bereaved parents and siblings. Josh’s brother Joe, remember, raised a load of money for them earlier this year by competing in the Brighton Triathlon. Now TCF have asked us to make a promotional film to publicise their work. And we start filming this Saturday. Two days of interviews, followed by two possibly three weeks in the edit. Its a great honour to be asked to make this film and we’re very proud to be able to use our talents in this way to promote TCF.  Follow our progress over the next few weeks and we’ll let you know when its ready for viewing.

Jimmy – Dec 2012

 

 

 

 

 

 

 

 

Mexican Day of the Dead at Dying Matters

MEXICAN DAY OF THE DEAD

It’s held every year on the 1st November and is one of Mexico’s more well-known public holidays.Images of brightly coloured masks, skulls and skeletons dancing to street music in riotous celebration are what come to mind.

Somewhere between Hallowean and Thanksgiving, its an opportunity for families to remember their dead, both personal and well known public figures.

Last week, Jane and I attended The Dying Matters annual Day of the Dead conference in London.


I’ve just downed tools at the end of a long edit for a BBC 2 series covering a year in the life of Claridges, an exclusive hotel in the heart of London.     We’ve missed a number of deadlines but 12 o clock on Thursday 1st November is absolutely solid one – no more extensions – that’s it ..  finito!   But its now 12.30 and we’re late.  Jane and I  are hurrying round the corner of the British Museum looking for the venue of the Dying Matters conference held to coincide with Mexico’s famous day.    We’ve been invited to screen the film of Josh’s funeral but I’m still not sure exactly what kind of occasion this is.   These days I find that it really doesn’t matter that I have no idea what we might be getting into – should I be nervous about speaking in front of a huge audience, are they professionals, charity workers, or bereaved parents like us.  It seems Josh’s death has given me the wherewithal not to care about these things.

We arrive in a large room with a low false ceiling still relatively empty – strip lights, three large screens along one wall and around a dozen round tables decorated with homemade sculptures modeled on those familiar images of hollowed eye sockets and gaping jaw lines – there are bowls of sweets and plates of biscuits with similar blood dripping themes. 

In one corner we find the table reserved for speakers.    Jane will easily fall into conversation with her neighbour;  I enjoy a moment of my own silence among the gathering audience, now numbering close to a hundred.   It feels comfortable to be here.   There’s a growing buzz of chatter which I am not part of, but then I have always liked that moment when as a child I would drift off  into my own reverie  secure in the  knowledge that the world was carrying on around me.

It’s a packed programme of speakers and presentations, power points and sincere deliveries – but the messages pass me by.    Something about volunteers to hold the hands of the dying, pathways to a good death, the launch of a form for funeral wishes, a film called “I didn’t want that” which I didn’t quite get.    Then Jane and I are standing by the podium, a little apprehensive now about  introducing something of a more personal significance.

‘Beyond Goodbye’ has been seen by quite few people – maybe hundreds, perhaps a thousand or so – not exactly a blockbuster but gratifyingly, it does have an audience.   It’s been on this site and on Vimeo for nearly a year now, and we’ve had a load of feedback as to how moving and comforting the film is.   But this has been from people we either know well, or  who are complete strangers.   In both these cases people have made a conscious choice to view the film.    Now as I stand here, it somehow feels like we are about to inflict our story and our grief on an audience who can’t  escape.    And I can’t escape my doubt …  of what value is this film to people who never knew Josh.  These were professional  funeral directors, academics and educationalists, casino online social and care workers, concerned surely with changing policy and attitudes towards death and dying.  Why should they want to identify with our grief amongst all others in their lives or the world in general.

Then there were those nagging thoughts of what Josh himself would have made of this.      All those photos of him on the screens – 3 times over – his coffin, his parachute jump, his aliveness and his deadness.    Could he, would he, be happy with this spectacle?    In the dark, I’m not so much looking at a film, as reliving the past two years.   I can feel the trickle of a tear on my cheek.   I brush it away along with thoughts that in exposing him to the world, of exposing his death to all and sundry, we are doing him a disservice.   Is there in all this, something shameful about dying?  Something so wrong, culpable, especially at such a young age.   And do we as Josh’s grieving family carry that shame.   Is that what I’m feeling now?

I do NOT want the lights to come back on.      But they do, in a muted silence followed by a gentle gathering of applause.   As I stare fixedly at a paint crack on the wall, I imagine all eyes are on us.     Another of the speakers on our table hands me a note – “I’m glad I’m not on next”.     The audience has been moved.     They have got to know Josh, and us, and his friends and they have found us real.    That if anything is the power of showing our film to a live audience, (as opposed to a remote, on line, disconnected viewer) – it makes our lives more real, more accepting of our reality without Josh.

Dr Kate Granger "My doctors wanted to treat me with about eight-ten cycles of chemo'. I put up with five then told them to get lost and went back to work."

When the note giver does speak she introduces herself as Dr Kate Granger, an Elderly Medicine Registrar and the author of two books – The Other Side and The Bright Side.     She then tells us that 14 months ago she was diagnosed with a rare and aggressive sarcoma which will end her life before too long.    Now that she is both patient and doctor, Granger explains that she wants to help health care workers to better understand what being a patient is really like, and how a doctor’s behaviour, no matter how small or seemingly insignificant, can impact massively on the people they look after.     Her books recount her personal battle with control, how and when to relinquish it, but Granger herself was an inspiration with her total openness about dying and what it means to her.

I must have learnt something about openness when it comes to death as my question to her, ‘how long have you got?’ comes quite easily.      The answer was in effect – anytime soon – the average life expectancy of people with this diagnosis is 14 months.    Most would put Granger’s composure in the face of such tragic circumstance, as manifest of an extraordinary well of individual courage and positive thinking.     But its also true, and as she remarked, it’s those family and friends close to her that are more distressed than she.     I can understand this.     The perceived nightmare is far worse than the actual nightmare.     If the doctors she wants to enlightened are death denying (possibly seeing a patients death as their own personal failure), we too know about a grief denying complex that seems to affect so many of our own acquaintances.

Dying Matters exists because of these denials.   “Let’s talk about it” the website almost screams.    But it feels we have a long way to go before we can have our own “Day of the Dead” here in Britain.     If we don’t go to next years event with Dying Matters, perhaps you’d like to join us for an evening of margueritas, encilladas, and possibly a sombero laden guitarist crooning ‘guantanamera” here in Chalford Hill.

 

JIMMY

8 Nov 2012

Dying Matters have now put Beyond Goodbye on their front page along with a nice article about Jane’s contribution – check it out here.    They’ve called it ‘Turning Grief into Positive Action’

 

Kate Granger’s website and blog are here


 

The shrine, where attendees were encouraged to post photos and memories of their loved ones.

 

the evenings entertainment