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How to Help a Grieving Friend: 11 Things to Do When You’re Not Sure What to Do

Every now and again, we see or read  things on the internet that express things we’d like to say, but so much better.   Such is this piece.  It’s  by Megan Devine, a mental health therapist who’s partner died five years ago.   So if you’ve ever been flummoxed by how to deal with someone’s grief, caught short on what to say to them, or are just unsure of how to “be'” with them, then here’s a few tips.     I hope it doesn’t sound to trite, but if we ourselves had had some grounding in these ideas in the months (and now years) since Josh died, then maybe we too would have had more compassion for those around us who wanted to help but didn’t know how.    (Jimmy September 2014)

The article first appeared in the Huffington Post in November 2013

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Megan Devine

How to Help a Grieving Friend

I’ve been a therapist for more than 10 years. I worked in social services for the decade before that. I knew grief. I knew how to handle it in myself, and how to attend to it in others. When my partner drowned on a sunny day in 2009, I learned there was a lot more to grief than I’d known.

Many people truly want to help a friend or family member who is experiencing a severe loss. Words often fail us at times like these, leaving us stammering for the right thing to say. Some people are so afraid to say or do the wrong thing, they choose to do nothing at all. Doing nothing at all is certainly an option, but it’s not often a good one.

While there is no one perfect way to respond or to support someone you care about, here are some good ground rules.

#1 Grief belongs to the griever.
You have a supporting role, not the central role, in your friend’s grief. This may seem like a strange thing to say. So many of the suggestions, advice and “help” given to the griever tells them they should be doing this differently, or feeling differently than they do. Grief is a very personal experience, and belongs entirely to the person experiencing it. You may believe you would do things differently if it had happened to you. We hope you do not get the chance to find out. This grief belongs to your friend: follow his or her lead.

#2 Stay present and state the truth.
It’s tempting to make statements about the past or the future when your friend’s present life holds so much pain. You cannot know what the future will be, for yourself or your friend — it may or may not be better “later.” That your friend’s life was good in the past is not a fair trade for the pain of now. Stay present with your friend, even when the present is full of pain.

It’s also tempting to make generalized statements about the situation in an attempt to soothe your friend. You cannot know that your friend’s loved one “finished their work here,” or that they are in a “better place.” These future-based, omniscient, generalized platitudes aren’t helpful. Stick with the truth: this hurts. I love you. I’m here.

#3 Do not try to fix the unfixable.
Your friend’s loss cannot be fixed or repaired or solved. The pain itself cannot be made better. Please see #2. Do not say anything that tries to fix the unfixable, and you will do just fine. It is an unfathomable relief to have a friend who does not try to take the pain away.

#4 Be willing to witness searing, unbearable pain.
To do #4 while also practicing #3 is very, very hard.

#5 This is not about you.
Being with someone in pain is not easy. You will have things come up — stresses, questions, anger, fear, guilt. Your feelings will likely be hurt. You may feel ignored and unappreciated. Your friend cannot show up for their part of the relationship very well. Please don’t take it personally, and please don’t take it out on them. Please find your own people to lean on at this time — it’s important that you be supported while you support your friend. When in doubt, refer to #1.

#6 Anticipate, don’t ask.
Do not say “Call me if you need anything,” because your friend will not call. Not because they do not need, but because identifying a need, figuring out who might fill that need, and then making a phone call to ask is light years beyond their energy levels, capacity or interest. Instead, make concrete offers: “I will be there at 4 p.m. on Thursday to bring your recycling to the curb,” or “I will stop by each morning on my way to work and give the dog a quick walk.” Be reliable.

#7 Do the recurring things.
The actual, heavy, real work of grieving is not something you can do (see #1), but you can lessen the burden of “normal” life requirements for your friend. Are there recurring tasks or chores that you might do? Things like walking the dog, refilling prescriptions, shoveling snow and bringing in the mail are all good choices. Support your friend in small, ordinary ways — these things are tangible evidence of love.

Please try not to do anything that is irreversible — like doing laundry or cleaning up the house — unless you check with your friend first. That empty soda bottle beside the couch may look like trash, but may have been left there by their husband just the other day. The dirty laundry may be the last thing that smells like her. Do you see where I’m going here? Tiny little normal things become precious. Ask first.

#8 Tackle projects together.
Depending on the circumstance, there may be difficult tasks that need tending — things like casket shopping, mortuary visits, the packing and sorting of rooms or houses. Offer your assistance and follow through with your offers. Follow your friend’s lead in these tasks. Your presence alongside them is powerful and important; words are often unnecessary. Remember #4: bear witness and be there.

#9 Run interference.
To the new griever, the influx of people who want to show their support can be seriously overwhelming. What is an intensely personal and private time can begin to feel like living in a fish bowl. There might be ways you can shield and shelter your friend by setting yourself up as the designated point person — the one who relays information to the outside world, or organizes well-wishers. Gatekeepers are really helpful.

#10 Educate and advocate.
You may find that other friends, family members and casual acquaintances ask for information about your friend. You can, in this capacity, be a great educator, albeit subtly. You can normalize grief with responses like,”She has better moments and worse moments and will for quite some time. An intense loss changes every detail of your life.” If someone asks you about your friend a little further down the road, you might say things like, “Grief never really stops. It is something you carry with you in different ways.”

#11 Love.
Above all, show your love. Show up. Say something. Do something. Be willing to stand beside the gaping hole that has opened in your friend’s life, without flinching or turning away. Be willing to not have any answers. Listen. Be there. Be present. Be a friend. Be love. Love is the thing that lasts.

Megan Devine is the author of Everything is Not Okay: an audio program for grief. She is a licensed clinical counselor, writer and grief advocate. You can find her at www.refugeingrief.com. Join her on facebook at www.facebook.com/refugeingrief

GRIEF IS NOT BROKEN

This post is a  bit of a departure for us – we are reproducing in full a article I found on Huffington Post.     Something we are not accustomed to doing but to my mind it is so good, I couldn’t resist.   Written in August 2014 Elea Acheson puts into the most perceptive words, a common dilemma for many grieving parents – to speak about your dead child with a stranger or to keep her/his existence hidden.      As she explores this situation (the ‘so how many children do you have?’ scenario) Acheson seems to blow apart many preconceptions (that even I had) about what it means to grieve for the death of a child.     Her son’s death didn’t break her, she says.  No she never felt broken.  But we talk of broken hearts all the time don’t we?   And instead of being consumed with grief, she’s overflowing with love… and , wait for it, she’s grown a ‘grief bone’….   a weirdly wonderful metaphor for the changed life she now leads.    (Jimmy  August 2014)

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The deliveryman stood in front of me, cheerful because it was his last drop-off before the weekend. His stream of thoughts rambled out, as every passing second made the festivities of the coming holiday grow closer. His children were planning a special treat for their mom for Mother’s Day.

His excitement was contagious. Parents love to share stories about their children, and I am no exception.

But I was faced with a recurring dilemma. Should I tell this stranger about my son, Vasu? Or should I keep my son’s existence hidden?

Being the mother of a dead child is a daily obstacle course of frustrations. Oh, sure, I get the meltdowns, or the oddball week of short tempers and crazy talk. But those are infrequent compared to the daily conflict between what I want to say about my boy and what most people, including you reading this now, are capable of hearing.

I smiled at the man and asked a few questions. But my internal cogs were already spinning, and that little inner voice shouted the usual warnings. Don’t do it, Elea. Don’t go there. He will disappoint you.

Almost everyone does, perhaps even you someday will disappoint me. It’s not your fault. My grief makes it easy to be hurt by things I can’t do anything about. Grief makes me helpless and defensive. I can sense your fear of what I am, and it can feel as if you wished my son’s death didn’t exist. It’s in your face. It’s in your body language. It’s in the way you can slam the conversation shut with few, if any, actual words. And then I must sit in silence, because my existence has made you uncomfortable.

You wouldn’t disappoint me if I kept my mouth shut. If I pretended that I was childless, or that I had let it all go, moved on, it would make you more comfortable. And I want you to be. I don’t want to be the elephant in the room. But my son didn’t cease to exist. He died. And he left me with all these memories of being his mother.

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I like talking about him. I smile more when I can talk about his six years of incredible life. I also like talking about death and grief.

So, while I listened to the deliveryman explain his joy of being a father, I gave in to temptation like I always do, and told him that this year Mother’s Day was also my son’s birthday. The man’s eyes lit up and he asked me how old Vasu was. I grinned bigger, nervously, because I knew what was coming. This conversation happens with almost everyone I meet, in almost exactly the same way.

“Oh,” I said, trying to shine OKAY-NESS through my eyes. “Vasu would have been 11 this year, but he died in 2009.”

I watched his eyes widen, lips purse, and his face shut as tight as a bank’s vault on a Friday afternoon. He couldn’t just walk away because that would be rude, and he couldn’t ask any more questions because… well, truthfully, what is there to say? We hardly knew each other, and I just slapped him with several of the harshest realities to human existence. Children die, we all die, life isn’t fair, and some parents spend much of their life grieving for their dead children. Kind of a conversation killer. But I am comfortably obtuse when it comes to Vasu’s life and death. It’s a doorjamb I consistently stub my toe on.

The man shifted back and forth from right foot to left. His eyes wandered, until it dawned on him how to get out of the discomfort. He told me about a friend’s cousin who died young. It was a deflection. He told a story parallel to mine so he wouldn’t have to cross over to it. It’s not really sharing. Sharing requires asking questions. Which I did… about his friend’s cousin who died young. And then he left without knowing anything about Vasu except that he would have been 11 years old.

This is not uncommon for me. I am the mother of a dead child. Most of you don’t know what to say to me. Perhaps you are afraid to reopen my wounds. You must think that my loss has broken my heart. You don’t see that my smile is hopeful. I like revisiting his life and his death, the way elephants will return to their children’s bones and lovingly caress a femur or skull. I am always looking for those people who might be curious about Vasu. But after almost five years, I haven’t figured out how to get through to you that it’s OK to ask.

You see, the truth is Vasu’s death didn’t break me. I never felt broken. Lost, yes, most definitely. I felt so lost that I didn’t know who I was anymore. I had to start my entire life over from the bits and pieces I could pull together. In the months after his death, I fled from everything I had ever known — friends, family, Vasu’s daddy. I had more reasons to follow Vasu than reasons to want to live. I had to learn how to want life again.

But my heart didn’t break. It overflowed.

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When Vasu was born, I fell in love with everything about him. But my favorite times were nursing. At first it was because my breasts were painfully engorged and every time he nursed, he drained the pressure to a reasonable ache. As we both got better at it, nursing became our face-to-face, heart-to-heart time. It was as if he was drinking love from me. After he died, my body was full of Vasu love, but he wasn’t there anymore to drain me regularly. Love festered and bulged and leaked.

Before becoming a mother, before I had Vasu, I was selfish in love. I expected it to be magical, whimsical and easy. I expected love to have the same goals, the same dreams, and the same ambition I had. Giving birth to Vasu opened my eyes to another kind of love. I won’t say unconditional love, because that doesn’t really exist. But my love for Vasu was something close to unconditional. The day Vasu was born I discovered I had a love organ that I had never used before.

Vasu’s life was hard, and at times required around-the-clock care. I could handle the sleeplessness because I had a love organ.

Whenever he slept I couldn’t stop myself from checking to see if he still breathed, because the love organ insisted I do so.

I panicked every time he caught a fever, hyper-vigilant whenever he wandered, listened to every sound he made, all because of love.

Desperate, unwieldy, crazy love.

Love got me through his diagnosis of cancer at 18-months-old. Love screamed at me to take him and run when the surgeons were preparing to cut him in half to get the tumor out. Love also calmed me and helped me hand Vasu over to the surgical team. Love softened the sounds of his screams.

Love got me through his first treatment and the years of check-ups, the health scares, his first day of kindergarten and the teachers who just didn’t understand why he was so wild. Love got me through his second treatment and held me up through the months it took for cancer to kill him.

And then he was gone, and I still had all this love bursting out of me.

When rivers flood their banks in the spring, are they broken? Grief is supposed to overflow us; that’s how it works.

Grief is not broken, and it doesn’t need fixing.

Maybe that’s why people are so scared of grief, because the word “broken” is used so often. Broken is a horrible thing. Broken is something that may mend, but will never heal. Broken will always leave scars to remind us of the pain.

The words we choose are important. The words we believe can lead us to choices that have consequences. And then we have to live with those consequences.

When Vasu was first diagnosed, I listened to the words that people used to describe my experience. They used words like “tragedy,” “unimaginable,” and “horror.” And yes, it feels like all of those. But that’s not all that it feels like. It also feels like love, because love gains strength when it is needed most. When someone you love gets in an accident, all your resentment, all your impatience, all your doubt disappears and you are left with worry, compassion and love.

Love pours out when fear creeps in.

Love is our ultimate defender.

But I wasn’t listening to love when people told me what they thought of my child’s cancer. All I could hear was fear. And I believed them. The longer I believed, the smaller fear made my world, until I was too afraid to go anywhere except the grocery store, Vasu’s preschool and the Children’s Hospital. I dragged the horror of unimaginable tragedy around with me wherever I went.

Do I blame everyone for using words of fear? No, of course not. These words are true too. But they are not the only truth.

After two failed treatments, Vasu’s cancer made me tired of believing in only the fear and pain part of grief. Tired of being sad, tired of being scared, just plain tired. I wanted something different. I wanted to witness Vasu’s death with innocent eyes.

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But once again I was bombarded by words of fear.

As Vasu was dying, people said, “What you are experiencing is the worst thing a mother could possibly go through.”

Fear, trying to crawl it’s way back into my body like a parasite.

But love gave me an out. Love let me smile and nod while secretly I visualized a hand in front of their faces so that their words would bounce back.

Vasu’s death was overwhelming. As cancer took over his body, I wanted to run away. It took too long and hurt too much, but love made me stay. Love gave me the endurance to witness his death.

I knew the moment death began. I saw it in his eyes. They grew wide as he realized that the bad pain was coming back, the pain he had told me the week before that he never wanted to feel again. It broke through his morphine haze, and then he shut himself off. It took several minutes for his body to stop, but Vasu was already gone.

Over the next 24 hours, I was compelled by love to gaze into Vasu’s face. Love needed to make sure. Love needed to know what death meant. Love needed every excuse to cry.

The day after Vasu died, I woke up and discovered I had grown a grief bone. If love is an organ that overflowed me with emotion, then grief is an extra limb that unbalanced and weighed me down.

I made a promise to myself that I would let grief in as willfully as I had let love in at his birth. I would put a hand in front of society’s judgments and expectations and I would not let the fear in.

At first, I couldn’t experience grief all at once. So my body relieved me of the burden. Chemistry took over, and for days I was euphoric. I couldn’t stop giggling and I found meaning in the tiniest of things; like a stoner seeing how perfect shoelaces are. I had orgasms in my sleep. For years, stress had stolen my orgasm and deadened my thoughts. But now my body was released from stress into the immensity of grief. I leaked tears, urine, mucus, pus and breastmilk. I was a mother engorged on unsatisfied Vasu love.

Then came the cycles of grief. People describe it as being struck by waves of pain and sadness, but to me waves are peaceful, powerful and soothing. My grief, on the other hand, came on like nausea and spewed out like vomit. Every hour I regurgitated Vasu’s last breaths, and then I shook uncontrollably afterwards with the need to save him.

And like death, grief is something that everyone must face alone. No one could say the right words that would manifest my happiness, because those words don’t exist. I didn’t want to be around people who needed me to be OK — because I wasn’t OK, and I had no clue if I would ever again be OK.

I fled from everyone, because their love wasn’t Vasu’s love. I sold everything I owned except my old blue mountain bike and some camping gear, and I bicycled the Pacific Coast Bike Route, alone. Every afternoon I sat on the shore and let grief flow out. I lived only for the moment and let the future take care of itself.

I decided to allow grief to come and go as it pleased for one year, and then I would put my past behind me.

Except that’s not how it works, is it? I wasn’t broken, so I couldn’t mend. I was changed.
When you grow a grief bone, it is there for the rest of your life.

It’s been almost five years now. Some months I am clear and purposeful, other months I am an absolute pill to be around. Grief makes everything bigger. Anger is huge, sadness is deep; joy is manic. Nothing happens small or easy for me anymore.

My grief bone made me capable of standing through the entire funeral of a friend’s child without a single tear, but when another friend got married and was living the happiest day of her life, I fled sobbing in panic.

My grief bone makes me switch from almost limitless empathy to incredibly short tempers from one moment to the next.

My grief bone can make me unhappy when people like the deliveryman that day, feel safer within their silence instead of asking about Vasu. If they would just let go of their fear of my pain, then I would be free to tell them about him. He left me with a lot of good stories.

Like the time he ran across the living room at top speed, slammed through the bathroom door where his daddy was taking a pee, and asked, “Daddy, what’s privacy?”

Or the time when he had a fever and he made me read Go Dog, Go for six hours straight. My love organ gave me the stamina of a goddamn migratory bird.

If you took the time to ask, I would tell you that the reason I can smile and laugh is because I know how to cry, and that my love for Vasu showed me how.

Follow these links to Elea Acheson here

http://eleaacheson.com/

http://www.huffingtonpost.com/elea-acheson/

https://www.facebook.com/EleadariAcheson

Learning from our Goodbyes


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On Tuesday 5th August 2014 the Harris clan gathered for the funeral of Josh’s grandmother Pat Harris. This was the third family funeral in as many years and we were quite apprehensive about yet another cremation and the possible return of  previous painful memories. As she bore her mother’s coffin into the crematorium Jane was conscious of her now ‘orphan’ status and what this might mean both as a daughter and a mother. In a sense we have been caught in the middle of different generational deaths – while we have a good enough word - ‘orphan’ – for a child without parents, we are yet to discover what we should call a parent whose child has died. And while the feelings and the sadness and the pain are so very different we both felt it important we should somehow equate them and make Josh too part of this ceremony for his grandmother. We have a lovely photo of Josh (aged 3) on holiday with Pat and Gerry – sadly one of only a few of the three of them – which we included on the order of service and Josh was mentioned a number of times throughout the day. To be honest this is not easy, we do not want to ‘dilute’ that sense of honour and respect we have for Pat, but at the same time her death and her funeral (as did Gerry’s) wouldn’t seem nearly as significant without Josh being there too. After all he was their grandson and theirs to mourn as we mourn them.

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In the end this blending of memories seem to work even though many of Pat’s friends had never met Josh. Compared to the way we said ‘goodbye’ to Josh, both Pat’s and Gerry’s funerals were more mute affairs though we carried forward the idea of inviting people to write messages on ribbons which could be tied to a flower and laid on the coffin as a central ‘doing’ act to the ritual.   Although there are strong Jewish roots to the family, our funerals are non religious and perhaps a bit ‘modern’ provoking one elderly relative afterwards to remark “what kind of funeral was that?” Our wonderful celebrant Ian Stirling was quick to respond – “that was a Pat Harris kind of funeral.”

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Funerals are of course for the living – and for what we take away from them as much as the memories we bring. We were all very moved by the poem that Jane read at the service and reproduced below. We know now that grief is hard work, maybe not so much for the death of a parent or a grandparent as it is for your child; but work nevertheless. And in that work, and in that experience of grief, inevitably we learn new things, new ways of looking at life. That is the gift our loved ones leave us.

“Comes The Dawn” by Veronica A. Shoffstall

After a while you learn the subtle difference
Between holding a hand and chaining a soul,
And you learn that love doesn’t mean leaning
And company doesn’t mean security,
And you begin to learn that kisses aren’t contracts
And presents aren’t promises,
And you begin to accept your defeats
With your head up and your eyes open
With the grace of a woman, not the grief of a child,
And you learn to build all your roads on today,
Because tomorrow’s ground is too uncertain for plans,
And futures have a way of falling down in mid-flight.
After a while you learn
That even sunshine burns if you get too much.
So you plant your own garden and decorate your own soul,
Instead of waiting for someone to bring you flowers.
And you learn that you really can endure…
That you really are strong,
And you really do have worth.
And you learn and learn…
With every goodbye you learn.

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This is one of the last photos we took of Pat, just two months before she died. We had recently collected Gerry’s ashes from the undertakers (this was over a year since he died - why it took so long is anybody’s guess)  and Pat had asked that they be scattered around a particular tree in the old family home near the golf courses in Troon. The tree had been given to them as a wedding present in 1951 and was one of many that Gerry planted subsequently in the many years they lived there. But the house now has new owners  and we needed to get their permission. We had planned to do this on our next visit but life and death intervened.

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It was the day following Pat’s funeral then, that we met again for another special ritual. Jane had asked the present occupiers of the house who kindly obliged – and with considerable grace as their afternoon was about to be disturbed by eight adults and two children, none of whom were dressed in the manner customarily required for the dignified disposal of a family patriarch.    Neither of us can remember being so involved in the funerals of our grandparents. In fact we were positively discouraged from even attending. In those days it wasn’t seen at all appropriate that young children should be present on such occasions – something to do with protecting their innocence, shielding them from sadness, from raw feelings. Yet here we were half a century later, on a bright summer’s day wandering around somebody else’s garden, carrying a box of human remains and with kids in tow!

‘With every goodbye you learn …’    And that learning can and maybe should start at any age, best done in the act of doing, of actual participation in ritual. For Pat and Gerry’s great grandchildren, Naomi and Louis, even while they may not recognise the full meaning of this day, hopefully they will remember the weight and the feel of their forebears ashes as no less fearful than the  bark on the tree and the dirt in the ground.

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Thank you for reading

Jane and Jimmy 

August 2014

For an evocative set of photographs from the day of Granny Pat’s funeral please take a look at this gallery

Goodbye to Granny Pat

and there’s another wonderful collection from the following day when we scattered Gerry’s ashes

Ashes to ashes – Grandpa Gerry goes home

 

 

Letting my Mum go – by Jane

Jane’s mum, Josh’s Grandmother, Pat died on Monday last (30th June) peacefully and in her sleep.   She had been admitted to hospital a few weeks ago with pneumonia and what looked like the beginnings of multiple organ failure but then released as her health and prospects had clearly improved.      Late last week though, everything seemed to shut down again and she was readmitted.   Jane joined her brother Richard by her bedside.   Rosa also travelled up to be with her Granny (having first left Glastonbury!).     Pat was 84.    Jane reflects on the experience of  witnessing her mother’s  death.

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After my Dad Gerry died last year, my mum seemed to be in fairly good health, until suddenly a few weeks ago she took very ill and was admitted to Ayr General Hospital near our home town of Troon in Scotland. At that time she was given a 50-50 chance of survival. It was a bit of a wake up call for us as a family but the coin landed the right way up – or so we thought. Two weeks later she was back in hospital and we were informed that this time Mum will not recover, in fact she probably only had days to live.

So when I caught the earliest train I could from our home in Gloucestershire it was with the sincere hope that I would get to the hospital in Ayr in time – a seven hour journey that felt like much more. Our last meeting a couple of months previously had been very difficult. My Dad Gerry had died a year ago last January and Mum had finally decided that she’d like to have his ashes at home with her so she asked me to pick them up and bring them round. But when we arrived (Gerry’s remains were in one of those tall cylinder cartons especially designed for scattering) it seemed it was all too much for her to deal with and I felt I was the messenger getting the blame for daring to suggest the idea. On leaving that time there was clearly a tension between us but never for a moment did I consider this would be my last visit before she was admitted to hospital with just days left to live.

Now as I stared at the familiar countryside of the Scottish Borders gliding past, I realized that what I really wanted, was to be able to tell her that I held no blame or bad feeling for this or any of the other differences we’ve had.  She is my mum after all and maybe a little thing like what to do with Dad’s ashes shouldn’t get in the way of my being fully present with her in her last few days on earth.  Dad’s ashes are now at my house, where they still wait while we decide how we honour them and him …   but for the moment I’m pushing these thoughts away along with the idea that I’ll soon have another set of ashes to take responsibility for. I was going to be 59 in just over a week and there is something very strange about the possibility of a birthday without parents. For the first time in my life I’m getting a sense of being properly grown up. You might have thought that Josh’s death would have propelled me into full maturity … but then his death didn’t leave me being a member of the oldest generation in our family.

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On Mum’s knee aged 3

My brother Richard was by Mum’s bedside in her own room when I arrived at the hospital. Mum was awake but clearly quite scared and panicky.   He told me she had multiple organ failure, that she was too weak for an operation to clear the fluid in her lungs and the end might be quite near.   Over the four years my Dad had been in hospital we’d had many conversations about his impending death and it had become quite apparent to the whole family that Mum was not at all comfortable with the thought of her own.    Now as I watched my mother gasping for breathe and clearly in real distress, it became obvious that we had to do something about the  manner of her dying, if only to help ease the frightened state she seemed to be in.    I was also  unsure whether hospital was in fact now giving Mum palliative care.    She was getting some pain relief but this was only being topped up as and when she became so short of breathe  she was actually fighting for air.   Was this going to be the way my mother would die?    Crying out in anguish as her body fought for life?   Together with the hospital we had agreed there would be no further medical intervention or any attempt to keep her alive, but why should she have to end her life in fear and alarm.

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This was still the situation when late in the evening, we decided I would stay with mum for the night and Richard exhausted by 48 hours of solid vigil, would go home to Mum’s house to sleep - a hard decision because it meant I was now on my own with Mum and her distress was mine alone to witness.   I would admit to a sense of deja vu, as I anticipated another fight with the hospital system in order to realise for Mum a better death than she was currently likely to have.   I’d spent years battling the NHS for better care for my Dad, and frankly I was tired, tired of constantly being a ‘difficult’ relative who only wants the best for their parent.   As it happened half way through the night a doctor finally did appear and  hooked up a syringe driver that would give Mum a continual dose of morphine and other drugs.  I found myself staring at this machine, watching the numbers on the gauge as the plunger made its steady and predictable journey towards zero.  I had never been more aware of death as a process rather then as an event, the drugs were sparing mum the agony of any panic she might be experiencing, but they were also presumably creating a thick fog in her consciousness which I imagined was what she would have wanted as she passed away.

I have never watched someone die before, not my Dad, not Josh (oh, how could that be possible) and I found I was strangely calm, almost hypnotized by the rhythm of my mother’s breathing which seemed to come from lower and lower down her body.   The distant voices from the nurses station provided a kind of reality check  to what felt like a strange dream.    Then for awhile a cleaner came and sat down beside me.   “Just keep talking to her hen” she said  “You ken she can probably hear you…”

At first light the next morning I took a break and a short stroll around the hospital grounds. I was grateful for the attention the staff had shown me throughout the night, reminding me that to be there for my Mum I also need to look after myself. I thought I knew Ayr hospital quite well (too many visits over the past few years) so was surprised to find a stone sculpture of a young girl letting go of a dove just outside the staff canteen.   Maybe it was the cool of the early morning air but the stillness and the serenity of this small sculpture seem to speak volumes – I was helping to let Mum go.

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I had been in two minds whether I should let Rosa know that her grandmother was dying.   I was aware that her granddad had died the year before and that as family we were still very much in shock following Josh’s death. We were all still desperately trying to adapt to life without him and I wanted to spare her the experience of yet another loss. She was also at Glastonbury and presumably having a great time. But at the same time I could hear Rosa’s voice saying ‘no secrets’ and ‘ how come I’m always the last to know’.   So I’d asked Jimmy to ring her.   She was tearful and terribly upset at first.   Then without a moment’s thought  she declared she would leave the festival and come and see her gran one last time.

It wouldn’t be until the following day that Rosa would get here and in the meantime I was concerned that Pat’s breathing was becoming even more laboured and more erratic. Again I found myself hoping against hope that Mum could hang on for her granddaughter.   A selfish thought maybe but I knew it could be a truly cathartic experience for Rosa, to witness death as an ordinary event, as a gentle passing of an older family member, not the extreme trauma of her brother’s death.

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Rosa arrived late on Sunday afternoon still in her muddy Glastonbury wellies, a fact to which the nurses turned a blind eye.   Once she had gotten over the first sight of her Grandma looking so poorly, so frail, so helpless with her oxygen mask on, she immediately relaxed, dried her eyes, and settled down to hold Pat’s hand.   And I realized immediately why Rosa had come.   She needed to be here, to connect.   But in a way, Rosa and her youth were also the connection bridging the gap between my motherhood and my ‘daughterhood’.  Then again Rosa’s capacity to deal very straightforwardly with what was in the room, her lightness of touch and the ease with which she could accept the reality of a soon to be death, brought another level of relief to both myself and to Richard.   We spent the rest of the evening, chatting away, reminiscing, not sure if Mum could hear us, or was even aware of our voices, our laughter, but it all felt very right.   Here we were three generations waiting for death to arrive, doing what people have always done. In this moment we were sitting by a whole history of deathbeds, attending to a whole history of ordinary deaths, whiling away the hours before every death that is in the right order of things. This was death without surprises and without false hope, a natural and as good as can be death, a death without trauma which might even bring some kind of equilibrium back into our lives.

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Pat Harris died at 7.30 the following morning.   It had been Richard’s turn to stay overnight and he called to say she was now at peace.   Rosa and I returned to the hospital and were led into my mum’s room, now cleared of all monitors, drip feeds, oxygen bottles and all the stuff that keeps people alive.

With the blinds drawn down, a soft orange light infused the room and in the stillness I tentively stroked my mother’s hand, still faintly warm. I thought fleetingly that now I am an orphan. And so is Richard.   A year and half ago, my Dad died in this very same hospital. We had now together twice experienced that intimacy that being with death brings.   Knowing death as a mother is beyond my capacity to describe (I will, I’m sure you know, never ‘get over’ Josh’s death) but knowing death in this the natural order of things is strangely life affirming and as a family I think we are stronger for it.

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I’d like to thank all the staff on Station 9 at Ayr Hospital for their compassion and thoughtfulness during the six days Mum was in their care.

And thank you for reading

Jane (July 2014)

and here’s a few photos from the family album

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Mum on her wedding day
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My Mum with her Mum – early fifties
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Honeymoon in New York 1950
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Pat and Gerry – 2010
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One of the last photos of Mum and me – I’m holding Dad’s ashes

Three years ago, three young men, three young deaths …

 

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Three years ago last weekend, three young men with their lives before them were snatched from this earth in a way that was as cruel as it was unexpected.   Bruno Max and Conrad were school friends on their gap year.  They had only just begun their travels in Thailand when the coach they were traveling in backed out onto a busy highway and collided with the on going traffic.  They were killed instantly.   This was a mere six months after Josh’s death in Vietnam.   All four young men were setting out to discover the world and to discover themselves.

We only know of this tragedy because Josh’s sister Rosa is friends of friends of Bruno’s family and was visiting in London when the news came from Thailand.   A sad coincidence then that we have got to know them all well in the past few years.    Conrad’s mum Amanda and Bruno’s family Gillian, Bella and William have become good friends and we think of them often but especially at this time.    Bruno’s girlfriend Saffia made theimage above and you can see more of Brunos’s work as a photographer here Beyond Goodbye – Continuing Bonds – Bruno Melling photographer 

We have also met Max’s dad Gerhard and his partner Madeleine – earlier this year Gerhard returned to the scene of the crash and made this film.

We think it is beautiful

 

thanks for watching

Jimmy

June 2014

On Fathers Day

On Fathers Day


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Fathers don’t grieve like mothers do

Fathers don’t hurt like mothers do

Fathers don’t yearn for a lost child like their partner will

Fathers are quite good at pretending that everything is Ok … ish

I’ve seen some father’s cry while their friends turn away

but I’ve never seen a father howl in anguish and cling to another

because the pain is too great

My father is now a distant memory. He taught me how

to bear life’s punishments but not to bare my soul

He would disapprove if I shared my son’s death

and talk about him as if he were still alive

What’s past is past he would say

and he would know because he fought a war

and saw many comrades fall

Life is for living was his constant refrain

and in a way he was right

But then I didn’t die before him

Did I?

Thanks for reading

Jimmy

June 2014 

 

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Josh Edmonds Memorial Scheme – Candidate chosen!

After a long and careful deliberation we have been able to select the next candidate for an internship with the Ministry of Sound.    Jane and I (Josh’s parents) along with Andy Freeman from Cirencester College and Lewis Murphy (last years successful candidate) met to pour over the applications and choose from the shortlisted interviewees.    A rewarding if slightly daunting task.     All the candidates were in their own way suitable so the decision really came down to who we felt would most benefit from occupying Josh’s shoes for a month at one of the nation’s best know clubs.

Josh’s Memorial scheme was started as a way of honouring his memory, his work and his passion for music and video.    Having studied at Cirencester College Media department, Josh then moved to London where he work as an intern at the ‘ministry’ for a few months before becoming a full time employee.   In total he spent three years producing over 200 video clips for the brand.    We feel sure he would be pleased with the way the scheme is going and would approve of this years successful who is …. (drum roll) ….Barnaby (Barny) Wilson

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Barny Wilson – candidate no 2 for the Josh Edmonds Memorial Scheme

Barny is 20, has grown up in rural Gloucestershire, went to Cirencester College has had a few gigs as a dj (Motion in Bristol) and in a sense is already following in Josh’s footsteps.

‘I’ve immersed myself in dance music culture since my early teens’ he says, ‘and I’ve wanted to be part of London’s creative arts scene right from when I first got into electronic music; …  (MOS) is obviously a cultural hub and hot spot for emerging talent and amazing opportunities, so I can’t wait to get stuck in’.

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aged six and already on the sticks

We wait to see if Barny continues down the music route or uses this opportunity to hone his video skills.    He has already started a blog about his experiences which you can read here  Barny Wilson’s Ministry Of Sound Internship – he starts at the Ministry at the end of this month June 2014.

A big thank you to all who applied for the scheme (shame but there can only be one candidate selected), thanks to Andy and Anita Pring at Cirencester College for organising the selection process, thanks to last years intern Lewis Murphy for your inspirational lead,  thanks to MOS for continuing to support the scheme and huge congratulations to Barny.   We know you will be fitting and accomplished filler of Joshua’s shoes!

Jimmy 9th June 2014

Here’s the link to Barnys blog again 

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THE WAITING ROOM and ‘Born out of death – a letter to Josh’


THE WAITING ROOM to be used by THE ALZHEIMERS SOCIETY

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Jane and I are excited to announce that we  have been commissioned to make a number of short films to be used by the ALZHEIMERS SOCIETY for a brand new training programme to be rolled out later this year. The videos will be made entirely from the footage we have shot over the past 5 years with Jane’s Dad (Josh’s grandpa).   Gerry lived with very severe dementia for the last years of his life, but these years were spent entirely as a patient on a hospital psychiatric ward, where his care was less than ideal – far less than ideal. We now have close on 100 hours of video material documenting what this meant for Gerry, for Jane and the rest of the Harris family.

We have always referred to the project as THE WAITING ROOM and its been sitting on the shelf in my cutting room just waiting for an audience  such that The Alzheimers Society can now provide. You can see glimpses of Gerry’s life in hospital by clicking on the image above. It is not easy viewing but just a year after Gerry died, we are so proud that his story can now be used to promote a better understanding of dementia, and the need for a more compassionate approach to the care of people living with the disease.

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Below we are reproducing Jane’s letter to Josh which may explain a little more her feelings about how this came about:

 Dear Josh

Three years  now and I’m learning to live without you much better.   There are those heart lurching moments when something is triggered in me and I feel the sudden pain in my heart as if it was yesterday – the sight of a tall young man with his mates, a music track, a word that you might have used spoken by someone else (‘mundane’ you said of something you were excited by) , seeing your friends now at 25 , that carefree look I see in young men in the street.

You changed our lives Josh.  Its strange and circular.  Jimmy and I met at film school all those years ago and then I made a decision to leave that avenue of work to train as a therapist so that we could be around more for you in the early years.   And now after your death we find ourselves working  together again making films with you centre stage. This website Beyond Goodbye was born out of your death. Its our way of staying connected to you and trying to make sense out of something senseless. But it has become much more than that.  As well as somewhere we can gather our thoughts and memories about you, it is now a place where we can share with others our feelings of what it is like to be a bereaved parent.  It’s not that we are keeping you alive in what some may see as an unhealthy way – more that we are doing something constructive and creative with what IS……we now know the best kept secret that every bereaved parent discovers – the loss of a child is not one that has a time frame (oh how  obvious on hindsight!)

So with everything we now do, you are always there, including the film and video productions we are now engaged in.   You were there when,  under the banner of Beyond Goodbye Productions, we made SAY THEIR NAME for The Compassionate Friends. We believe SAY THEIR NAME is the only film made in this country exclusively by and for bereaved parents.  And in a sad but still wonderful way, we have to thank you for that opportunity for as one of the contributors to that film says – through our work with TCF –  “we have made some of the best friends we wished we’d never met”.

And when  Grampa Gerry died in January last year, you were there ‘with us’ at his funeral. We showed the film of you and Joe as you skydived for your 21st birthday to raise money for Alzeimers.   At that time, Grampa had only just developed the disease, the dementia had not yet taken hold.  But as his and Granny Pat’s lives became more and more affected by the condition, we continued to work with them, filming on nearly every visit to the hospital, collecting material that we hoped one day might help to make a difference to way that dementia sufferers are cared for. There have been a lot of false starts with all the major UK broadcasters turning our project away.  But then we screened an 8 minute version of the film to a dementia conference last December, which someone from The Alzheimers Society saw and that led to the current commission. 

People often ask me what it means to see my Dad seemingly suffering so on the big screen.  I tell them I’ve always being looking for something positive from his experience as I have with losing you, dear Josh.   But its also true that I do have mixed emotions – Gerry’s death was in what people call the “right order of things”.   Unlike you, Gerry waited a long time to die and when death eventually came it was as much a release from the terror of dementia as it was a sorrow of his passing.   We want to tell his story, if only because for those who do get to grow old we want them to have the best possible care and understanding – that their last years do not become lost years. 

So thank you Josh. It is largely  because of you that Jimmy and I have been able to find our way back to the kind of work we love to do.  And what’s good about it is that you are with us every step of the way.

with love

Mum

 

Jane also presented the 8 minute version of the THE WAITING ROOM at another conference, last month.  “Making Sense of Dementia” at the Freud Museum was designed to find out what psychoanalysis can offer to the understanding and treatment of dementia.

Thanks for reading and watch out for further news of THE WAITING ROOM.

JIMMY 

February 2014

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100th POSTCARD TO JOSH

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This week we have received (should we say) Josh has received his 100th postcard. A remarkable milestone, tremendously sad, tremendously poignant but hugely satisfying to all who knew him. Postcards to Josh was set up by Josh’s friend Victoria Trow very soon after the accident, as a way of staying in touch with him and his dream to travel the world. And now three years on and the 100th postcard delivered to our door, we have this amazing sense of Josh’s spirit being carried around the globe; of Josh being talked to and spoken about, being photographed and written about, being hauled up mountains and flying down ski slopes, being shoved into backpacks, escaping from beer bottles, (maybe even rolled into one of them funny cigarettes on a lonely beach somewhere) but always enriching all our journeys wherever we go.

And as we have discovered POSTCARDS TO JOSH has become probably the clearest manifestation of the way we have tried to continue our relationship with Josh. We have not (as maybe much of society had expected us to do) let him go – we have not ‘moved on’ from his death and forgotten him. As we have written elsewhere this is not an unhealthy approach to grief or to our attempts to rebuild our lives after the death of one who was so loved and such a big part of our lives. It is we believe profoundly healthy and profoundly life affirming – Josh still has much to teach us about life and death.

Postcard 100 is (fittingly perhaps) from Josh’s brother Joe who loves to ski

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You can see more Postcards by visiting the site here POSTCARDS TO JOSH

Three years ago today ….

16th January 2014

3 years ago today an ordinary beautiful man
boy had his life taken away on a road in Vietnam
3 years ago today our family was broken apart
3 years ago today his brother became an only brother
his sister became an only sister
how is it then that Joshua is still with us
he is still here walking up the garden path to our front door
still here to sit and have a coffee and a piece of toast
still here to help me write these words
still here to hold my heart and insist that I
keep breathing ….

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10.30 am

Today is 16th January.  Joshua’s deathday.  His birthday is 23rd May and his deathday is 16th January.  I do not object to the word ‘deathday’, it is an accurate description for such an anniversary.    It’s just a date after all but like his birthday it functions as a marker, a moment in time and something to hang on to in this strange world we now find ourselves in.

I am visiting Emily, my mother and Josh’s grandmother.   I’m explaining why I’ve brought a candle and some photos of our boy.   I’m never quite sure about this bit.   My mum has alzheimers dementia and almost no long or short term memory.   It is hard enough for her to remember the names of all her grandchildren let alone the fact that one of them is dead.   She is asking what happened to him. He died while he was traveling in south east Asia.   How did he die.  It was a road accident.  How old was he.  Twenty two.  Oh yes he’s up on the hill.  There’s a tree there and you can see down the valley. My mother is captivated by these large prints of someone she doesn’t really know.  Or someone she once knew but now doesn’t. Who is this then? It’s our Joshua. Where is he?  He’s dead Mum.  Why, what happened to him?

I light the candle.  That’s not very big is it?  What kind of candle is that?  It’s true, it’s a small tee light in a glass saucer and the wick is too short to hold a decent flame.  I feel a bit awkward trying to remember Josh with so little means at my disposal. I go back to the beginning.  It’s for Josh, Mum, he died three years ago and I’ve brought some things to help us remember him.  Why?  Have you forgotten what he looks like?   She studies the photo we used for his funeral with the graphic “Celebrating Josh”.   What’s there to celebrate – he’s dead isn’t he?   You don’t celebrate when someone dies.  Well we did, Mum. How do I explain this?   She was there three years ago at his funeral, at what we then called a celebration of his life, a two day event created out of the deepest sadness but with the hope of finding some residue of joy.   (we have two films on this site that record Josh’s funeral)

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It wasn’t like that in her day. There are photographs of her parents, my grandmother and grandfather on her sideboard. I do not remember their funerals (I was 10 and then 16) merely the announcement that they had died, a notice in the local paper. My own parents did not show that much emotion at the time.  It seemed like a day like any other.  We didn’t stop work and we didn’t stop going to school. I was not invited to their funerals.  They disappeared almost immediately from our family life swallowed up by the normality of ordinary generational death.

And here I am now, on Joshua deathday, struggling to find a connection between my mother and her grandson, and struggling with her illness and the distance it is imposing between us.   I never been so acutely aware of a life running out. I’m tired, she says, time to put me in the oven. I know Mum.  Would that I could do something to help you. (What do I mean by that?) Would that I could bring Joshua back. (A cruel irony – to actually have it in my gift to end my mothers life but not to restore my son’s).   Would that we had had more time to say goodbye to him, to drag his death out.   (Is that what we are doing now … dragging his death out? … going through these photos over and over again).   There is of course no comparison but still I find myself in an emotional push me pull you situation – more time for Josh less time for Mum.   In this moment what will be fights with what was.  I wonder if it was wrong of me to bring them round, these photos, to ask her to recall yet again this tragedy.   But right now I need what I am looking for – some kind of consolation in the bringing together of two of the most important people in my life, of two beautiful souls with only the thinnest of veils between them.    On this day much like any other, I want to mourn and celebrate Joshua as well as anticipate the inevitable departure of this wonderful woman who gave me life.

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Soon after Joshua died, a friend of ours, a psychotherapist told me ‘sooner or later you are going to have to forget Josh’.  He was referring to the Freudian idea that the mourning process is primarily one of a gradual loosening of attachment to a lost loved one, so that one can continue to live a healthy and mentally stable life.   To do otherwise, the theory goes, is to sink into melancolia and madness.    There is a certain attraction to this sense of forgetting all too evident as part of my mother’s condition.    The problem is that Josh’s death won’t go away.  There’s no getting rid of that memory, the biggest turning point in our family’s history, fast becoming myth but no less potent for that. For that’s what it now is – a story told over and over so that instead of fading it becomes more and more embedded in our lives.  Josh of course is not always in the forefront of my mind – the day’s work will distract me for relatively long periods.  But then back he comes with full heart stopping force.  Josh alive and Josh dead (he can’t be dead if he wasn’t alive) its a whole package of memories fighting with each other and creating a chaos of feelings not least the recognition that I have forgotten him for a while.  In this I envy my mother’s dementia.  How old was he when he died – so sad – it was a woman wasn’t it, she stepped out into the middle of the road and he swerved to avoid her.  The narrative is not  that accurate but it is now well worn and provides its own sense of security both for her and for me.   Its construction belies another kind of forgetting born out of hopeless repetition and familiar distraction.

14015748a2.00 pm

Jane and I have just downed a scotch each at the pub where Josh used to work and are walking along the track that leads to his tree.   Its a pilgrimage we have made many times now – three years of tending to our boy’s grave, three years of arranging flowers and of pinning up flags, three years of doing what we should never have to do.   The land rises in front of us and as we walk the view across the valley broadens revealing our village in the distance … as well as a build up of dense cloud. We make it to the nearby barn just in time as a wall of rain sweeps across the fields.    Our plans to spend some time at the tree are for the time delayed by another onslaught of January weather.

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The barn is modern and  large and almost empty – to one side a stack of straw bales providing its only sense of purpose. It’s dark  with a kind of inverted light blowing through the slats at each end, casting non-shadows on a featureless concrete floor.  It’s a place without much history, and to try and conjure a Joshua moment here feels both cruel and disappointing.   But the downpour is heavy and persistant and we have no choice but to spend time here.

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Did Josh ever come here – shelter like us from the rain.  We planted his tree in the next field, less than a hundred yards away, at a spot where he would gather with friends on days with better weather than this.  As a curious teenager, would he come with them to this barn to play hide and seek with their new and emerging selves: to take away with them fond childhood memories, some precious secrets. Can we now invent his presence, discover something here that can remind us of him. Just a small something to prove we have not forgotten him, to tell Freud he was wrong.  That we can live with our memories and stay sane.  But where is he on this day, three years after his death day.  We’ve heard other bereaved parents worry about losing their child a second time into the fog of time, forgetting the way they laughed, the way they walked and played; the way they smelt, the touch of their skin.  It is easy to do if only because to remember is such a painful joy: and there was always more to their lives than we can ever know.  Yes, its the joy of his life that we need now but how,in this barren barn space, vacant, like a mind gone blank, how do we conjure memories of Josh.  How do we bring him back.

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There is a platform in the stack of bales at about head height – the size maybe of a double bed and we can climb to it and look out over the void.   Jane lights a candle and we imagine how it would be should the flame catch the straw – how long would it take for the whole lot to go up – a massive plume of white smoke – the sound of fire engines – shouts.    There was an episode when Josh was just 15 – he and his friends had disappeared one night telling each set of parents a different story.   It was Josh who eventually answered his mobile phone to reveal where they had got to.   We found them preparing for a small rave in barn similar to this one, they had their beers and their cannabis, their sound system and some matches.  For safety’s sake we brought them home – we pooped their party and Josh got the blame.

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The rain has eased but it hasn’t stopped and brief look at the sky tells us it’s not going to anytime soon.   We’ve been in the barn for over an hour so if we’re going to make it to Josh’s tree we better go now or not at all.   Whichever way we’ll be getting a soaking.   The ground is heavy under foot as we make our way along the side of the newly ploughed field, through the break in the hedge, and over the fence to where his tree stands with its fort like stock fence.    Josh’s tree is like sentinel, always there, always looking out over the valley, always waiting for us to visit.

On our return from  SE Asia, we had brought a number of  Vietnamese flags as a momento of the country where Josh died.   Two of these we tied to the corner posts – flashes of red to be seen clearly from the other side of the valley.   But our winters weather has done its damage and Jane finds them slightly the worse for wear and blown into the bushes.    She retrieves them – they hang lifeless and the rain drips down our arms as we stretch to fix them back in place.    With this task done, we stand in the rain and wonder what do we do next. Someone has been here before us and left a bunch of flowers. Later after dark and when the sky has cleared more friends will come with a lantern to hang by the tree and we will see it from across the valley, a small flame with much to say.

Jane and I touch hands in silence.   Three years ago and sometimes it seems like yesterday, sometimes it feels like its been forever, or no time at all.  Most times it feels we live our lives in some kind of a limbo.    Could it be that as bereaved parents we’ve been given special insight to what is meant by eternity – to that ‘no time at all’.

Thanks for reading

and thanks to all who sent suuch kind messages and held us in your thoughts on Joshua’s deathday

Jimmy

January 2104

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